HOPE FOR HUGHEY

From His Wife...

This is my husband, Robert Darrell Hughey. He suffers from advanced stage NASH (Non-Alcoholic Steato Hepititis), which also causes Hepitatic Encepholitis (with symptoms that mimic Alzheimers). This disease has forced him into early retirement. Gives him more bad days than good. It gives him bulging veins throughout his digestive system, that sometimes pop. He has almost bled to death twice. He is a husband, father, grandfather, uncle, brother, and friend. AND HE NEEDS A LIVING LIVER DONOR. Someone to donate half of their liver. And the half grows back into a whole liver in both the donor and in him. This will save his life. If you are interested, please contact https://survey.henryfordlivingdonor.org/approach/… or e-mail me with questions at hugsbyhughey@comcast.net To help him live in the meantime, he takes many medications. He is currently in the medicare gap, and has to pay 70% of the cost of all medications, some hundreds of dollars a month. gofundme.com/robert-darrell-hughey

From one of Robert's daughters

This is my Dad. He needs a liver transplant. He needs a LIVING DONOR. He is Poppa to my boys & niece. He has been married to my Mom for 46 years. He’s a brother. He’s who I inherited my love of music from. He’s who my sister & brother & I all got our hilarious sense of humor from. My Dad can be a little gruff sometimes but he is a big softie and very sentimental. He is my boys’ biggest fan. There is absolutely nothing he wouldn’t do for his grandkids. A few short years ago, he was diagnosed with Diabetes relatively late in life. If you don’t know, Diabetes is a terrible disease which affects people differently. In my Dad’s case, it has ravaged his liver (My Dad has never drank alcohol more than the occasional beer). A portion of his liver has cirrhosis, which means it no longer functions and does not filter his blood. This has resulted in numerous life threatening and life altering effects . Because his liver no longer allows blood to pass through as it should, he has suffered from ruptured esophageal varices (veins). He must now CONTINUOUSLY have esophageal scopes and have the varices banded to prevent ruptures. He has nearly bled to death more than once and this can happen without warning. His condition has deteriorated so far that he must now have all of his scopes done at Henry Ford hospital since they have the emergency physicians & capabilities that no hospitals in our area have. My Dad also suffers from hepatic encephalopathy, which is the buildup of ammonia in his brain due to his liver not filtering his blood as it should. This has resulted in a fairly rapid deterioration of some of his cognitive abilities, his memory, etc. It is similar to some symptoms of dementia. It will continue to worsen until he receives a transplant. Other issues my Dad must continually battle include ongoing painful & embarrassing stomach issues, fluid buildup where he gets liters of fluid drained off at a time, not to mention being on so many medications that he & my mother face ongoing financial burden and anxiety. My Dad was placed on the official liver transplant list at Henry Ford Hospital in January. At this point, his only option is to find a living donor. Earlier this year, I went through the process to try to become a living donor for my Dad. I have a compatible blood type, I’m within the age limits, I’m in good health, etc. I made it pretty far in the process only to learn that I am not a candidate due to an abnormality in one of the main veins to/from my liver. One other person whom my sister knows also tried, but it turns out that she also has a liver abnormality that she must address. Other members of our family are either outside of age & health parameters or are not compatible blood types, etc. My Dad is scared. Our family is scared. His health has deteriorated so much that we are skipping our annual family camping trip, in hopes that maybe in another couple of years he will have a new liver and be able to resume one of our cherished family traditions. My Dad’s condition will continue to deteriorate steadily until he receives a transplant. This means ongoing suffering in his quality of life and possibly worse. I’m asking that all of my friends and loved ones consider learning about what it means to be a Living Donor; to spread the word in hopes that someone may find it in their heart to consider seeing if they could be a donor. Feel free to send me questions. I can share what my experience was or find out the answers to whatever questions you may have. If you know of someone who may be interested, either message me directly or email my Mom at HugsbyHughey@comcast.net. Here is a link to information about being a Living Donor at Henry Ford: https://www.henryford.com/servic…/transplant/…/living-donor… Please share if you would like. Thank you. Peace & love to all of you.

From a Friend of the Family.......

This is my friend's Dad. He needs a liver transplant from a LIVING DONOR. A few years ago, he was diagnosed with Diabetes. His diabetes ravaged his liver (he has never drank alcohol more than the occasional beer). A portion of his liver has cirrhosis, which means it no longer functions and does not filter his blood. Because of this, he has suffered from ruptured esophageal veins. He must now have esophageal scopes and have the veins banded to prevent ruptures. He has nearly bled to death more than once and this can happen without warning. He also suffers from hepatic encephalopathy, which is the buildup of ammonia in his brain due to his liver not filtering his blood as it should. This has resulted in a fairly rapid deterioration of some of his cognitive abilities, his memory, etc. It will continue to worsen until he receives a transplant. Members of his family are either outside of age & health parameters or are not compatible blood types, or have conditions that preclude them from being a donor. If you know of someone who may be interested in being tested as a potential living donor match, email my friend’s mom at HugsbyHughey@comcast.net. Here is a link to information about being a Living Donor at Henry Ford: https://www.henryford.com/services/transplant/liver/living-donor?call=transplant-liver-adwords&gclid=EAIaIQobChMIm-Wkvo3H4gIVz8DACh2V3gF2EAAYAiAAEgIUI_D_BwE And a GoFundMe to help with their medical expenses: https://www.gofundme.com/robert-darrell-hughey